Ty Hafan

family stories

family stories

Elain

elain's story

Little Elain James was referred to Tŷ Hafan in January 2011. Elain was antenatally diagnosed with congenital heart disease, but it wasn’t until she was born that her family knew the full extent of her illness.

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alyssia

alyssia's story

When Alyssia was four months old, her mum, Danielle, noticed she wasn’t developing like other babies her age.

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Ellis

ellis' story

Whilst battling cancer as a baby, Ellis Smith from Cwmbran was diagnosed with neurofibromatosis type 1 (NF1), a genetic condition causing benign tumours to grow inside the body.

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Alice

alice’s story

They were told the most devastating news any parent can hear – their unborn daughter had a condition that meant it was very likely she would die in childhood.

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callum

callum's story

My name is Amie and my son, Callum, goes to  Tŷ Hafan. He loves it and so does the whole family.

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Casey

casey's story

Three-year-old Casey was born with severe brain damage following complications at birth. He has since been diagnosed with severe epilepsy, spasms, cortical visual impairment and evolving cerebral palsy.

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Rhys

rhys' story

From spending time with his mates to playing video games or going bowling, outgoing Rhys loves nothing more than staying at Tŷ Hafan.

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willow

willow’s story

Kelly and Damien Matthews were devastated when they were told their daughter may not survive her first few days due to a life-threatening condition called Central Hypoventilation. 

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Olivia

olivia's story

12-year-old Olivia suffers from cerebral palsy, visual impairment and physical delay.

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archie watson

archie's story

We hit our first anniversary, Archie’s birthday on 6 September. It was a lot harder than we had expected.

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