I think the biggest thing that Tŷ Hafan gives the twins is confidence. They are really quiet and sometimes don’t say anything at all in certain environments, but at Tŷ Hafan, they are totally different and can be themselves.
To me Tŷ Hafan is a special place. It is a place where you have fun, laughter and tears too. The staff from the cleaners, chefs, care team, nurses and admin workers are all wonderful and make you feel so welcome at Tŷ Hafan.
I have twin brothers who are 13 years old who have Duchenne muscular dystrophy. We have been coming to Tŷ Hafan since 2009. I have had some great times at Tŷ Hafan and have attended many sibling evenings.
Many people don’t know that Tŷ Hafan cares for the whole family, including the grandparents. It is a fantastic charity that does so much good for the twins and our entire family. They make me feel so welcome and we always have so much fun and lots of giggles when we’re there.
As one of Lewys’ links I am allocated to work with him when he visits Tŷ Hafan. But as him and his brother, Rhodri, are inseparable you pretty much work with both of them.
We like everything about it; the food, the pool, the bath, the bribery from the staff and ‘borrowing’ things from the managers offices and holding them for ransom.
Little Elain James was referred to Tŷ Hafan in January 2011. Elain was antenatally diagnosed with congenital heart disease, but it wasn’t until she was born that her family knew the full extent of her illness.
When baby Ollie was born in June 2014, he wasn’t breathing. So he was resuscitated before being put in the arms of his Mum, Sophie. She and her husband Sean took their precious new-born son home the next day, but for some reason, they knew something wasn’t right.