Ty Hafan

family stories - Rhys

rhys's story

From spending time with his mates to playing video games or going bowling, outgoing Rhys loves nothing more than staying at Tŷ Hafan.


Rhys suffers from Duchenne Muscular Dystrophy (DMD) and he and his family were referred to Tŷ Hafan in 2005.

The condition means that by the age of 10 most boys will use a wheelchair and although life-expectancy can vary, many boys do not live beyond their teens.

14-year-old Rhys is a cheeky young man with a wonderful sense of humour and faces his condition with such bravery.

Rhys

I was about four years old when I started coming to Tŷ Hafan. DMD means to me that I get tired easily, and I can't use my legs and body so well. I have difficulties in doing things, such as different activities. I have to use my electric wheelchair to get around. I can do some things on my own with support and I can get around in my chair.

His mum and dad, Sharon and Mark, felt reassured that there was an organisation like Tŷ Hafan to call upon when life became more difficult.

Mark said: "We were overwhelmed by how welcoming everyone was when we first arrived. The care team are fantastic and we can't think of a better place for Rhys to visit. He loves it and has made so many good friends as a result."

Rhys said: “I was about four years old when I started coming to Tŷ Hafan. DMD means to me that I get tired easily, and I cannot use my legs and body so well. I have difficulties in doing things, such as different activities.

“I do understand things about DMD; my muscles have started to go weak and other parts of my body are weak too. I have problems moving. I can't walk any more but I use my chair to get around. I need help in school and at home and when I go to Tŷ Hafan, I have my carers to help me. There are things I cannot do, but there are other things I can do with help.

family stories - Rhys

“I really enjoy going to Tŷ Hafan. It is a great place to visit and stay. The carers and people are so friendly, helpful and great fun. I enjoy staying for a long weekend. I like going out with my carers and I enjoy the meals at Tŷ Hafan – they are great. I like to play games in the den with friends I have made at Tŷ Hafan. It’s fab!”

Tŷ Hafan takes its support to wherever it is needed: at home,  at school or in hospital. We do this completely free of charge  for families in Wales that need us. Please help us continue to be there for life-limited children and their families, so they can make the most of the precious time they have left together. 

Download a PDF copy of Rhys' Story here

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