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take part in tŷ hafan’s rainbow run to help children like alyssia

alyssia and daniellePlaces for Tŷ Hafan’s Aberdare Rainbow Run are filling fast with more than 700 people already signed up to raise vital funds for the charity.

Taking place in Dare Valley Country Park on 18 July, the event will see fundraisers showered in every colour of the rainbow along the 5K route.

Kindly supported by Jane Hodge Foundation, Princes Gate and Western Power Distribution, the Rainbow Run is expected to raise more than £50,000 for Tŷ Hafan.

Tŷ Hafan, the hospice for children in Wales, has cared for 622 life-limited children and their families since its inception in 1999.

One of the children who benefits from Tŷ Hafan’s support is little Alyssia from Cwmbach in Aberdare.

When Alyssia was four months old, her mum, Danielle, noticed she wasn’t developing like other babies her age.

After a number of tests, Alyssia was diagnosed with Schizencephaly – a rare developmental brain disorder. 

At almost four years old, she is unable to walk or talk but brings a lot of joy to her family with her beautiful smile and cheery character.alyssia and danielle

Her mum, Danielle, said she takes ever day as it comes and concentrates on making the most of every moment with her daughter.

She said: “I sometimes wonder why us? Why me? But we’ve just got to get on with it. I am just so grateful that we aren’t alone as Tŷ Hafan is there to support us.”

Danielle feels exhausted at times as Alyssia’s condition requires round-the-clock care which is why Tŷ Hafan’s support is so vital for her family, especially the short-break care they receive at the hospice.

Danielle said: “Having time to relax at Tŷ Hafan is so valuable. I very rarely have a good night’s sleep so it’s great to catch up on some rest when we’re there.

“Last time, Alyssia stayed on her own. It was really difficult to leave her but the team at Tŷ Hafan are incredible and I know she’ll be well looked after.

“It is a little holiday for her as well as for me. They all fight over her when she’s there and she is able to experience things that she can’t do anywhere else. She absolutely loves the hydrotherapy pool and the sensory room.”

Alyssia has also been diagnosed with global development delay, epilepsy, visual impairment and a chromosome abnormality.

Danielle said: “It’s an amazing charity and I would encourage as many people to show their support as possible so they can help more families like ours.”

 

take part in the rainbow run

To register for the Aberdare Rainbow Run, please visit www.rainbowrunwales.co.uk or call 029 2053 2282 for more information.

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