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tŷ hafan and cardiff and vale university health board cooperate to extend paediatric care in wales 

Hot on the heels of the launch, by the Minister for Health and Social Services, of the Tŷ Hafan commissioned report into the future needs for paediatric palliative care in Wales, Tŷ Hafan, Cardiff and Vale University Health Board and the Welsh Government are delighted to announce considerable momentum has already been achieved delivering against the report’s recommendations. 
 
Riley at report launch at the Senedd
 
An All-Wales Consultant in Transitional and Paediatric Palliative Medicine will be recruited in January 2016, jointly employed by the NHS and Tŷ Hafan. By cooperating with the NHS, Tŷ Hafan has made possible the recruitment on a full-time basis and, in turn, fulfilled three of the seven recommendations made by Professor Marcus Longley in the report of the Welsh Institute for Health and Social Care in September.
 
The innovative role, which will be based at Tŷ Hafan in Sully, complements existing medical services at Tŷ Hafan, enhancing medical support for children and families in the care of Tŷ Hafan and extends support to families throughout Wales whose children our transitioning from children’s to adult services.
 
By enabling the further development of paediatric consultant cover, it will be possible to strengthen the existing 24/7 telephone service to support professionals caring for life-limited children and young adults in Wales for the first time.
 
The Palliative Care For Children And Young People In Wales: Meeting Future Needs report, published by the University of South Wales’ Welsh Institute for Health and Social Care and commissioned by Tŷ Hafan, highlighted how services required for children with life-limiting conditions differ considerably from adult palliative care and made seven recommendations for improving the support available to families in Wales.
 
Mark Drakeford, Welsh Government Minister for Health and Social Services, said: “I welcome this newly extended role which provides the opportunity to build on extremely important work previously led by Dr Victoria Lidstone. It is a positive example of our combined commitment to delivering high quality compassionate care to young adults at what can be difficult times for them, their families and carers.”
 
The consultant will hold a substantive contract with the NHS through Cardiff and Vale University Health Board and an honorary contract with Tŷ Hafan, with 60% funding from the health board and 40% funding from the charity.
 
Tŷ Hafan Deputy Chief Executive Officer Jeremy Jackson said: “At the time we launched the report, I claimed that it would herald a new period of engagement between the NHS and Tŷ Hafan and so it has proved. We’re delighted to join forces with the University Health Board to integrate our services and in doing so improve the experience of families facing unimaginable circumstances. I welcome the addition of the consultant to our dedicated care team.”
 
Rosemarie Whittle, Head of Operations and Delivery in Community Child Health at Cardiff and Vale University Health Board said: “We’re really pleased to be working together with Tŷ Hafan on facilitating this innovative new post which will be jointly funded by Welsh Government through the End of Life Implementation Board and Tŷ Hafan.”
 

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