Ty Hafan

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run to help make short lives shine brighter 

Wales’ brightest fun run is coming back to Tredegar this summer.

The paint-splattering Rainbow Run challenge event will make a splash at Parc Bryn Bach on 8 July.

Raising money for life-limited children and young people and their families at the Tŷ Hafan children’s hospice, the Rainbow Run is a 5km colour run (or walk), where along the route participants get showered with different colours of powder paint.

The event raises money for children like four-year-old Callum Sainsbury, who has a life-limiting condition called Ohtahara Syndrome.

Callum was born by Caesarean Section on 18 May 2012. When he was five weeks old, he started fitting. Eventually he was having at least 19 fits a day and was hospitalised for nearly four months.

It took almost a year before he was diagnosed with Ohtahara Syndrome. Callum has since been diagnosed with cerebral palsy and scoliosis – curvature of the spine. He can't walk, talk or even smile.

His mum Amie said: “Callum is such a pleasant little boy who we love to bits. We wouldn’t change him for the world.

“Tŷ Hafan has been my rock. They help us as a family and make us feel so welcome when we visit.

“When the nurses look after Callum, it gives us time to spend time with our daughter, Kelcea. They have helped us so much and we can’t thank them enough.”

Mair Kinsey, Head of Major Giving at Tŷ Hafan, said: “By taking part in our Rainbow Run events, you are helping families like Callum’s make the most of the precious time they have left together, as your valued sponsorship allows us to continue offering care and support across Wales.”

For more information, or to sign up for the Rainbow Run, please visit www.tyhafan.org/rainbow-run

 

 

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