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beach rainbow run hopes to turn the turn the tide for children

Beach runners will be showered from head to toe in vibrant multi-coloured powdered paint this autumn in aid of Tŷ Hafan.

The Porthcawl Rainbow Run 5km colour run (or walk) is returning to Coney Beach on 7 October.

The 5km colour run (or walk), based on the Indian Holi festival of colour, aims to raise money for the children’s hospice, which supports children with life-limiting conditions and their families across Wales.

The event raises money for children like four-year-old Callum Sainsbury, who has a life-limiting condition called Ohtahara Syndrome.

Callum was born by Caesarean Section on 18 May 2012. When he was five weeks old, he started fitting. Eventually he was having at least 19 fits a day and was hospitalised for nearly four months.

It took almost a year before he was diagnosed with Ohtahara Syndrome. Callum has since been diagnosed with cerebral palsy and scoliosis – curvature of the spine. He can't walk, talk or even smile.

His mum Amie said: “Callum is such a pleasant little boy who we love to bits. We wouldn’t change him for the world.

“Tŷ Hafan has been my rock. They help us as a family and make us feel so welcome when we visit.

“When the nurses look after Callum, it gives us time to spend time with our daughter, Kelcea. They have helped us so much and we can’t thank them enough.”

Mair Kinsey, Head of Major Giving at Tŷ Hafan, said: “The Rainbow Run is not a race, nor is it about speed or fitness; it’s about celebration, having crazy fun with friends and raising money for Tŷ Hafan.

“Tŷ Hafan is a magical place, full of fun and laughter and not what you might imagine a hospice to be. We help children and families make the very most of the precious time that they have together, making sure that a short life is a full life.

“That’s why we think that the Rainbow Run is the perfect way to celebrate and support the work we do.

“By taking part in our Rainbow Run events, you are helping families like Callum’s make the most of the precious time they have left together, as your valued sponsorship allows us to continue offering care and support across Wales.”

For more information, or to sign up for the Rainbow Run, please visit www.tyhafan.org/rainbow-run

 

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