Mo has a condition called Neurofibromatosis Type 1, a disease he was born with. It causes lots of problems with his organs and means he is on lots of medication. He also had a bleed on his brain which caused a stroke leaving him with some paralysis on his right side.
Mo has been coming to Tŷ Hafan since he was nine years old. Mo said “The thing that’s so special about Tŷ Hafan is they make you feel part of the family. It’s such a lovely, warm place, it’s like my second home. When I was younger I used to like using the pool, going on trips with my friends and playing in the playground. As I became a teenager, I got to go in the den. Where I could hang out with my friends and play computer games. It was nice to have our own space away from the kids.”
When Mo turned 19 he began his transition into adult care services, he was scared and anxious about his new beginning, but he knew that Tŷ Hafan and Shirley his Family Support Practitioner, would be with him every step of the way.
“The thought of going into adult palliative care services makes me feel scared, uncertain and unsettled. The transition was a minefield for me and my family but Shirley has reassured me from the moment it all began. She’s been dealing with all the different agencies, speaking on our behalf and making sure the transition goes as smoothly as it can. Shirley is my voice.”