Ty Hafan

#family friday

why tredegar is the place to be this saturday

My name is Amie and my son, Callum, goes to Tŷ Hafan. He loves it and so does the whole family.

Callum and family

Callum is four and has Ohtahara syndrome - a rare epilepsy condition. 

He was born by C section on 18 May 2012. He was ok at first but when he was five weeks, he started fitting. He was having at least 19 fits a day and he was hospitalised for nearly four months.

He had an MRI scan, a lumbar puncture, blood tests and genetic testing and it took almost a year before he was diagnosed with Ohtaara syndrome. Callum has since been diagnosed with cerebral palsy and scoliosis - curvature of the spine.

He can't talk, walk or even smile. The last smile I had from him was when he was six weeks old.

Despite this, Callum is such a pleasant little boy who we love to bits. We wouldn't change him for the world.

Tŷ Hafan has been my rock. They help us as a family and make us feel so welcome when we visit. They have helped us so much and we can't thank them enough.

This Saturday, Amie and her family will be taking part in the Tredegar Rainbow Run to raise money for Tŷ Hafan. Please join them and run/walk the 5k route along Parc Bryn Bach to support children like Callum.

You can either register on the day (cash only) or online. For more information visit www.tyhafan.org/rainbow-run 

Thank you

 

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