In this week’s Family Friday, 12 year old Poppy Jones uses new technology to tell her story. We asked Poppy a few questions, and here, she gives us an insight into her world.
Q: Please describe what it’s like to be Poppy Jones
A: Fun, crazy, nuts girl who likes adventure and is out-going.
Q:.Describe a typical day or week in the life of Poppy Jones
A: I do a lot of I pad and watch Youtube
Q: Can you tell us about your condition
A: I’ve got cerebral palsy – is a group of permanent movement disorders that appear in early childhood. Signs and symptoms vary among people. Often, symptoms include poor co-ordination, stiff muscles, weak muscles and tremors. There may be problems with sensation, vision, hearing, swallowing and speaking. Often babies with cerebral palsy do not roll over, sit, crawl or walk early as other children of their age. Other symptoms may include seizures and problems with thinking or reasoning, either of which occurs in about one third of people with cerebral palsy. While the symptoms may get more noticeable over the first few years, the underlying problems do not worsen over time.
Q: What makes you happy?
A: Cardiff City.
Q:What makes you sad?
A: Bad Education on Netflix
Q: Can you tell us what you think about Tŷ Hafan – what you like best about it and why. Describe your favourite stay at Tŷ Hafan and your best moments.
A: I like talking about Noahs Ark Children’s Hospital for Wales and Bristol Royal Hospital for Children.
Jeff took me to Cardiff City Stadium and I met the Chairman of Cardiff City and he gave me a tour.
Q: Why should people support Tŷ Hafan?
A: Give money to Tŷ Hafan and work in Tŷ Hafan like my dad
Q: Use three words to describe Tŷ Hafan.
A:Good, fun, helpful.
Q: Use three words to describe Poppy Jones
A: Nice, fun, crazy.