Children’s Hospice Week is coming to a close this weekend, and here at Tŷ Hafan, the highlight of the week was our fabulous summer holiday themed party. We didn’t let the miserable drizzle get in the way, and brought the outside in, which resulted in what can only be described as general mayhem – just how a good children’s party should be.
Amongst the candyfloss and congas, barbeques and balloons, a limbo competition and even an impromptu and very messy water fight, our children and their families took time to relax together, be happy and enjoy the moment.
And that’s the theme of this year’s Children’s Hospice Week - making moments matter. As the only week in the year dedicated to raising awareness and funds for children across the UK living with life-limiting conditions and the lifeline services that support them, Children’s Hospice Week aims to show that children’s hospices are places where children and their families are happy places where they live life to the full, no matter how short it may be.
As anyone who has visited Tŷ Hafan will know, the hospice is a very different place to what people might imagine. Of course we deal with serious and challenging conditions, but the hospice is also a joyous place, full of life, where our families experience a vital break from the realities and trials of caring for a life limited child 24/7.
During the week, there’s been a host of activities and events, creating moments that matter for our families, helping them to make memories together. Summer’s approaching, but while most families are packing their suitcases for their summer holiday, many families we support are packing theirs to come to here for vital short break care.
And that’s why our lounge was crammed full of children and staff wearing flip flops, floppy hats, sunglasses and beach towels (there was also a very questionable pair of shorts and a ‘lifeguard’ who didn’t like swimming) as we celebrated happy holidays with our families.
Every year, more families are turning to us for care and support than ever before. It costs nearly £12,000 a day to run Tŷ Hafan which is why every penny raised during Children’s Hospice Week will make a difference to hundreds of children and their families across Wales.
Children’s Hospice Week is organised by Together for Short Lives - the UK charity for children’s palliative care.