Ty Hafan

faq

frequently asked questions

What is Tŷ Hafan?

Tŷ Hafan is one of the UK’s leading paediatric palliative care charities and offers the only children’s hospice service in south Wales.

We provide comfort, care and support to life-limited children, young people and their families throughout Wales.

 

How does Tŷ Hafan help life-limited children, young people and their families?

We provide specialist care and support to help families make the most of the time they have left together and create and cherish a lifetime of memories.

Our care and support is provided at our hospice, in the homes of families and in the community. This may be for days, weeks, months or years.   

An important part of the support we offer is our short break care. This allows families to take much-needed time out from their caring duties whilst a child stays with us at our hospice.

 

How are children and young people referred to Tŷ Hafan?

We offer our service to all children and young people in Wales who have a life-limiting condition. Anyone can refer a child or young person, as long as they have the permission of the parents. It can be a family member, medical professional, social worker, neighbour or friend.

 

Is there a waiting list for Tŷ Hafan’s support?

No. If the parents are happy for their child to be referred to Tŷ Hafan, they need to complete a form giving us permission to ask their paediatrician for a medical report.

If the child or young person’s condition meets our criteria, they are eligible to use our services. We will then carry out an assessment of their needs and their family’s to create a personalised care programme.

 

How much do families pay to receive Tŷ Hafan’s support?

Nothing. We provide our service for free.

 

What is a “life-limiting condition”?

We use the term life-limited to describe a child not expected to live beyond 18 years of age.

 

What is palliative care?

Children's palliative care is an active and total approach to care. It focuses on improving the quality of life of a child and their family in every possible way by addressing their physical, emotional, social and spiritual needs.

It includes the management of distressing symptoms and the provision of short break care, and allows families to express their feelings from diagnosis.

Tŷ Hafan will support families through bereavement and will be there for as long as we’re needed.

 

What conditions do the children and young people have that are cared for by Tŷ Hafan?

They include Duchenne muscular dystrophy, cystic fibrosis, severe cerebral palsy and some very rare genetic conditions. Some children are diagnosed at birth, some in early childhood. Others receive no diagnosis, and sometimes a child’s treatment may have stopped completely.

 

How many of the children and young people have cancer?

Less than 5%.

 

Do the children and young people know they are going to die?

Some do: it depends on their age, condition and circumstances.

 

How old are the children and young people who use Tŷ Hafan?

We care for and support children from birth to their 18th birthday. If a young person reaches 18, they are no longer able to come to Tŷ Hafan for short break care, but we continue to support them and help them through the transition to adult services. This may include using an adult hospice.

 

Where do the children and young people come from?

Our catchment area is mid, south and west Wales (from Aberystwyth downwards). But we will support a child or young person wherever they live in Wales.

 

What are the differences between adult hospice care and children’s hospice care?

We focus on quality of life rather than end of life. This may mean we provide support and care for a long time, because many life-limiting conditions deteriorate slowly.

This long period of illness can put enormous strain on family life, so we always make sure the needs of parents and siblings are taken into consideration as well.

 

Can a child’s or young person’s family stay at the hospice whilst they receive short break care?

Yes. The whole family is welcome. This includes parents, brothers and sisters.

 

Does the Tŷ Hafan hospice ever close?

Tŷ Hafan is open all year round, during this time we provide a 24-hour on-call service. And in the event of an emergency, we will accommodate a family.

 

Where is the hospice?

The hospice is near Sully, in the Vale of Glamorgan, south Wales. But many of our services are delivered in the community.

 

Does Tŷ Hafan have a patron?

Yes. His Royal Highness The Prince of Wales.

 

How can I give a donation to Tŷ Hafan?

You can make a one-off donation online or set up a direct debit to make regular monthly payments on our website.

You can also send a cheque made payable to Tŷ Hafan to Tŷ Hafan Head Office, Hayes Road, Sully, CF64 5XX.

Or you can pop into one of our shops with a cash donation or cheque. Find your nearest shop by clicking here.

 

How do I make a complaint?

Tŷ Hafan is committed to providing high-quality services and continuously aims to improve them. However, we recognise that there may be times when our services may not live up to expectations. When that happens, we need to examine the circumstances surrounding the issue so we can try to resolve it quickly, fairly and effectively.

Care

You can view our Complaints documents here.
Tŷ Hafan statement of purpose

Fundraising

Tŷ Hafan Fundraising Complaints Policy
Tŷ Hafan Fundraising Promise


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