Baby Loss Awareness Week brings communities together to offer a safe, supportive space for the 1 in 2 people touched by pregnancy and baby loss.
It’s a time to share experiences, break the silence, and remind families they are not alone.
This week is a powerful collaboration between bereavement charities across the UK, united in support, solidarity and comfort for everyone whose lives have been changed by baby loss.
Immediate emotional and practical support
When a baby’s life is expected to be short, we can provide support very early on – sometimes during pregnancy or while a baby is still in neonatal intensive care.
Specialist Neonatal Pathway
Since August 2023, we’ve offered a dedicated neonatal referral pathway led by Neonatal Palliative Care Clinical Nurse Jemma King. This means families in NICU can get timely and tailored support. Read more about Jemma’s role here.
Creating lasting memories
We help families make precious memories, such as taking handprints, reading stories, and capturing photographs, even in the most difficult moments. “I realised afterwards that I would never have thought to have taken pictures or a video of all that”, shared mum, Kath Keeble.
A peaceful environment
If a family chooses to come to Tŷ Hafan with their baby for end-of-life care, our hospice provides a peaceful, private space where families can be together, away from the clinical setting of hospitals.
Support through life, death and beyond
Tŷ Hafan’s care doesn’t end with bereavement. We offer ongoing support to parents, siblings, and extended family members – helping them navigate life after loss, based on each family’s individual circumstances, wants and needs.
Remembrance
We give families opportunities for remembrance, including a pebble engraved with their child’s name, our award-winning birdsong memorial where the child’s name is turned into birdsong, dedicated memorial services in the summer and winter, plus a Wave of Light ceremony during Baby Loss Awareness Week.
“I’d never been able to hold Tommy, just gently touch his head and his feet. He was so premature and couldn’t tolerate being held.
“So, at that point a bit of me was like: ‘Oh, I’m going to get to hold my baby!’ But then instantly I knew that the first time I’d hold him would technically be the last. When he was alive, anyway.
“I call Kirsty from Tŷ Hafan the angel of our family because in that moment she just appeared – I know now, someone from the hospital must have called her. And it’s only thanks to her that we’ve got pictures and a little video of our last moments with Tommy.
“Walking out of those NICU doors with him – I’d only ever imagined doing that when he was OK. But I knew then: ‘The reality is, we are going into this room and he is going to pass away. And we are going to have to walk out of this NICU without a baby.’
“I sang Tommy to sleep, and he passed away in my arms on 30th October just after 6 o’clock in the evening. He was eight days old.”
Read Tommy’s full storyAt Tŷ Hafan, we’ve always supported families who’ve experienced baby loss. But in recent years, the demand for our neonatal support has risen significantly. Between April and September 2025, we received more neonatal referrals than in the entire year from April 2023 to March 2024.
If this rise continues, we could see 50 neonatal referrals by the end of March 2026 – more than double the number from two years ago.
This increase reflects both a growing need for our services and the impact of our neonatal referral pathway, launched in August 2023 by Neonatal Palliative Care Clinical Nurse Jemma King. Before this, many families with babies in NICU were missing out on the vital support Tŷ Hafan can offer.
Right now, Tŷ Hafan is only able to provide support to 1 in 10 families who could benefit from our care.
Tŷ Hafan’s ambition is that when a child’s life will be short, no family should have to live it on their own. Every family should have access to the care and support they need through their child’s life, death and beyond.
Donate today
There are lots of different ways you can support Tŷ Hafan Children’s Hospice during Baby Loss Awareness Week and all year round.