Little Elain James was referred to Tŷ Hafan in January 2011. Elain was antenatally diagnosed with congenital heart disease, but it wasn’t until she was born that her family knew the full extent of her illness.
When Alyssia was four months old, her mum, Danielle, noticed she wasn’t developing like other babies her age.
Whilst battling cancer as a baby, Ellis Smith from Cwmbran was diagnosed with neurofibromatosis type 1 (NF1), a genetic condition causing benign tumours to grow inside the body.
They were told the most devastating news any parent can hear – their unborn daughter had a condition that meant it was very likely she would die in childhood.
My name is Amie and my son, Callum, goes to Tŷ Hafan. He loves it and so does the whole family.
Three-year-old Casey was born with severe brain damage following complications at birth. He has since been diagnosed with severe epilepsy, spasms, cortical visual impairment and evolving cerebral palsy.
From spending time with his mates to playing video games or going bowling, outgoing Rhys loves nothing more than staying at Tŷ Hafan.
Kelly and Damien Matthews were devastated when they were told their daughter may not survive her first few days due to a life-threatening condition called Central Hypoventilation.
12-year-old Olivia suffers from cerebral palsy, visual impairment and physical delay.
We hit our first anniversary, Archie’s birthday on 6 September. It was a lot harder than we had expected.
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