Doctors diagnosed Lilly-May with Leukodystrophy, a life-limiting brain condition that affects the central nervous system, which is responsible for nearly everything we do from our heartbeats to walking.
When Dan and Alex's baby son Felix was just a few months old, his parents received the devastating news that their little boy had a life-limiting condition and would never walk, talk or even live past infancy.
Even though Micaela knew she had a high risk pregnancy, she and her partner Matthew had no idea about just how poorly their little boy was going to be.
Elain James was referred to Tŷ Hafan in January 2011 when she was just 8 months old. Elain was antenatally diagnosed with congenital heart disease, but it wasn't until she was born that her family knew the full extent of her illness.
When Alice was born at 34 weeks, the doctors delivered devastating news to her mum and dad – their newborn baby girl had just 20 minutes to live. Barry and Rebecca had known their daughter was at risk since their 20-week scan had picked up problems, with serious implications for their unborn baby’s safety. But they could never have imagined the difficult road that lay ahead of them.
When baby Ollie was born in June 2014, he wasn’t breathing. So he was resuscitated before being put in the arms of his Mum, Sophie. She and her husband Sean took their precious new-born son home the next day, but for some reason, they knew something wasn’t right.
In 2001, Wendy and Adrian Watkins were looking forward to the birth of their twins to complete their family and provide their nine-year-old son, Aled, with siblings.
I think the biggest thing that Tŷ Hafan gives the twins is confidence. They are really quiet and sometimes don’t say anything at all in certain environments, but at Tŷ Hafan, they are totally different and can be themselves.
To me Tŷ Hafan is a special place. It is a place where you have fun, laughter and tears too. The staff from the cleaners, chefs, care team, nurses and admin workers are all wonderful and make you feel so welcome at Tŷ Hafan.
I have twin brothers who are 13 years old who have Duchenne muscular dystrophy. We have been coming to Tŷ Hafan since 2009. I have had some great times at Tŷ Hafan and have attended many sibling evenings.
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