Archie Watson’s life was limited to just two and half years, but the mark he left at Tŷ Hafan will last forever.
Born in 2010, little Archie showed no sign of illness until the age of one, when he started having seizures and his development slowed right down.
Tests revealed he had Tay-Sachs disease – a rare and usually fatal genetic disorder that causes progressive damage to the nervous system.
The family from Caerphilly were devastated with the diagnosis but were able to find comfort in Tŷ Hafan – the hospice for children in Wales.
Brad said: “Tŷ Hafan was like a beacon for us. They were a ray of light during our most difficult time.”
Brad and his wife, Lauren, chose to spend Archie’s final days at Tŷ Hafan, where they made precious memories with their son in the most comfortable environment for them.
He said: “We never ever dreamt or expected to be part of the Tŷ Hafan family, but we are really glad they are part of our lives after what we went through.”
The couple tell their heartfelt story, alongside their newborn son, Sam, in the charity’s new legacy film.
Tŷ Hafan supporter and rugby pundit Eddie Butler is the narrator for the film which has been created to encourage people to think about leaving a gift to Tŷ Hafan in their Will.
In the film, Brad describes why the public’s support has been crucial for his family. He said: “Without Tŷ Hafan’s amazing supporters, Archie would never have been able to leave his mark on this world the way he did.”
He added: “And although time moves so quickly, our memories will always be there to help slow things down as we reflect on the legacy that Archie has left in our lives.”
Laura Barlow, Tŷ Hafan’s Legacy and In Memory Officer, said: “One in five children at Tŷ Hafan is cared for thanks to our supporters leaving a gift in their Will. Little Archie has left his mark here in Wales in so many ways – including Tŷ Hafan in your Will really is a wonderful way to leave your mark here too.”
Tŷ Hafan is the leading charity in Wales dedicated to caring for life-limited children and their families from across Wales. It costs £3.7m a year to provide the charity’s state-of-the-art facilities at Sully and its support services to families out in the community.
For more information about the charity’s legacy campaign, please visit www.tŷhafan.org\leaveagift or call 029 2053 2265.