The only two children’s hospices in Wales are working constructively with the Welsh Government, Members of the Senedd, and the End-of-Life Care Board to find a sustainable funding solution.
The proposal for a Lifeline Fund stemmed from the Family Voices report jointly published by the charities in 2020.
Between us, Tŷ Hafan and Tŷ Gobaith provide respite and palliative care for more than 450 families with terminally and seriously ill children and offer around 2,500 nights of respite care each year in Wales.
Currently we receive less than 10% of our annual funding from the Welsh Government and statutory sources like local authorities and health boards. This is in stark contrast to England, where in 2020/21 children’s hospices saw an increase in state funding from 21% to 34% of charitable expenditure - a move in the right direction.
Elsewhere, in Northern Ireland funding sits as 25% and Scotland 50% - while the Republic of Ireland recently announced it would fund 30% of running costs for their children’s hospices.
You can help us ensure that our call for a Lifeline Fund remains on the political agenda in Wales by writing to your constituency and regional Members of the Senedd.
This will help ensure that elected representatives remain focused on the need to offer a sustainable funding solution for those children with unfairly short lives and that they receive the best possible care, at home, at the hospices and in the community.
Thank you for your support.