Ty Hafan

#family friday

bereaved father runs in memory of his late son fynley

Next month, James Cooke will be running his first ever marathon, across the Brecon Beacons, in memory of his son Fynley who was cared for by Tŷ Hafan.
In this week’s Family Friday James talks about how much Fynley enjoyed his breaks at Tŷ Hafan during his three years - and why he is now taking on this huge challenge on 2 October.

The 26.8 mile route of the Trail Pursuit Marathon will take him across three of the Beacons’ largest mountains – Pen y Fan, Cribyn and Fan y Big.


James said: ‘A few words about the biggest inspiration I have known. Fynley spent his life with an undiagnosed genetic syndrome which caused numerous health problems.

He had a tracheotomy when he was three months old and struggled with epilepsy throughout his life.

Fynley was also severely visually impaired but this didn’t stop him enjoying every day he could.

He loved being in sensory rooms and music, as well as the feeling of being in water.

He also liked to chill out by lying in the shade of a garden listening to birds and wind chimes.

Fynley made lots of friends in nursery and was an extremely popular boy, casting his spell on anyone he met with his cheeky grin.

Tŷ Hafan and its facilities were a paradise for Fynley who loved the sensory facilities on offer and visited multiple times in his three years.

I’m now raising money for Tŷ Hafan by challenging myself to do a 26.8 mile run in the Brecon Beacons, where I will ascend nearly 5,000ft including Pen-y-fan, the highest mountain in south Wales.

This will be my first marathon and any donations really will make it that little bit easier to complete!

James has already almost hit his fundraising target of £1,000!

If you would like to sponsor him for his challenge, here is the link to his JustGiving page