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Tŷ Hafan Children’s Hospice is gearing up for its biggest fundraising appeal of the year with the aim being to raise £350,000 in just 60 hours! 

The When Your World Stops Appeal will feature Sara and Jason Morris from Ammanford and their twin son and daughter Alfi-Jay and Besi-Jane. Tragically, not long after he was born, Alfi was diagnosed with the rare genetic condition Neonatal Marfan Syndrome.

Tŷ Hafan has supported the family since the twins were nine months old, through Alfi’s death shortly before his second birthday, and this support continues to this day.

“The support they have given us has been incredible. There were times when Alfi was rushed into hospital and Tŷ Hafan staff were already there waiting for us, making sure we had a bed and everything we needed. They were our lifeline,” says mum Sara.

“Alfi died peacefully in his dad’s arms on 1st March, St David’s Day and our wedding anniversary.

“At Tŷ Hafan, you don’t have to put a brave face on. You don’t have to pretend that everything is ok, because every [Tŷ Hafan] family understands how you feel.”

The When Your World Stops Appeal will start at 10am on Sunday, November 26 and will end at 10pm on Tuesday, November 28. Every penny the charity receives within that 60-hour period will be match-funded meaning donations will be doubled.

John Lowes, Head of Fundraising for Tŷ Hafan, said: “Our aim is to raise £350,000 to help Tŷ Hafan to continue to provide vital care and support for children with life-shortening conditions and their families in Wales.

“To help us do this we are now recruiting Appeal Champions. An Appeal Champion reaches out and asks people they know to donate to the appeal. This could be via a network or community, colleagues, parents at school or through social media.

“You can also host a fundraising event around the time of the appeal and add your donation to your page. All donations made to this appeal through your support will be match-funded and doubled in value.

“I’d like to say a huge thank you to everyone who has already signed up to be an Appeal Champion for us, because thanks to every person who signs up, we will be able to reach even more people and raise even more money so that we can continue to help even more families like Sara, Jason, Besi and Alfi’s”

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