734702

Our work with politicians and decision-makers

our-political-work

Tŷ Hafan brings the voice of children and young people with life-shortening conditions and their families to the Welsh government, members of the Senedd and other key decision makers.

Our aim is to highlight the significant struggles they face every day and the need for local and national action, so they receive the all-round care and support they require, today and long into the future.

Groundbreaking report launched

Working together with Tŷ Gobaith – the only other children’s hospice in Wales – we used Children’s Hospice Week (19th – 25th June 2023) to launch some truly ground-breaking research.

The findings within The Children in Wales Requiring Palliative Care: Trends in Prevalence and Complexity 2009 – 2019 report will have a big impact on the future development of our services and the funding we get for them.

The report is the first ever to focus only on children in Wales and looks at trends within children in Wales living with life-limiting conditions in the decade 2009 to 2019.

The key takeaway is that the number of children with life-limiting conditions in Wales between 2009 and 2019 rose by almost a quarter.

This means there are many more children and families who need the specialist support that only Tŷ Hafan and Hope House Tŷ Gobaith can provide.

Download the summary report
political-work-wide

How we support MSs

Our Public Affairs team supports and works with the Welsh Government, Members of the Senedd and other key decision makers to make sure more children with life-shortening conditions and their loved ones receive the specialist care and support they need.

If you’re an MS or other key decision maker in Wales who is interested in our life-changing work, we can help you by:

Giving you a detailed briefing about our work.

Arranging visits to our hospice

Arranging visits to Tŷ Hafan services in your constituency or local area.

Giving advice on relevant constituency casework

Providing case studies, briefings and statistics for debates and speeches

For more information about how we can work with you, please contact Matt Greenough, Public Affairs Consultant, matthew.greenough@tyhafan.org.

Recent successes

Additional statutory funding secured

In January 2022, we were delighted that Eluned Morgan MS, Minister for Health and Social Services, announced Tŷ Hafan and Tŷ Gobaith (Hope House’s children’s hospice in north Wales) will each receive £440,000 in additional statutory funding every year, recurrent for at least the lifetime of the Sixth Senedd.

This positive first step towards a more sustainable funding solution for the hospices was in no small part due to the publication of our Family Voices report in 2020.

A big thank you to everyone who supported this campaign. The additional funding you helped to secure will provide us with greater financial certainty and help us do even more for the children and families we care for.

We now look forward to continuing to work with the Senedd to ensure Tŷ Hafan and Tŷ Gobaith play a central role in developing an end-of-life care pathway that’s 100% right for children and young people in Wales.

Michael Sheen meets Seth – Tŷ Hafan’s first member of the Welsh Youth Parliament

Helpful resources

Read or download a range of Tŷ Hafan resources to learn more about our vital services and the difference we make to hundreds of lives every year.

Children with a Life-limiting or Life-threatening condition in Wales: Trends in prevalence and complexity

The report is the first ever to focus only on children in Wales and looks at trends within children in Wales living with life-limiting conditions in the decade 2009 to 2019.

Open

Family Voices report

Published in 2020, our joint report with Tŷ Gobaith children’s hospice sets out the support families of children with life-shortening and progressive conditions need in Wales.

Open

Tŷ Hafan and Tŷ Gobaith briefing: A Lifeline Fund for Wales

Following the Senedd elections in May 2021, Tŷ Hafan and Tŷ Gobaith increased their efforts to advocate for an uplift in statutory funding.

Open

Tŷ Hafan and Tŷ Gobaith briefing: Supporting the Families of a Bereaved Child

Published in November 2021, our briefing document provides an overview of Tŷ Hafan and Tŷ Gobaith’s bereavement services

Open

Tŷ Hafan and Tŷ Gobaith briefing: Supporting Access to Appropriate Short Break Services in Wales

Our Family Voices report revealed that around half of the families we support want more and longer short (…)

Open

Tŷ Hafan and Tŷ Gobaith Children’s Hospice Week 2022 briefing

To mark Children’s Hospice Week 2022, Tŷ Hafan and Tŷ Gobaith hosted a special event in the Senedd (…)

Open