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Our work with politicians and decision-makers

Tŷ Hafan brings the voice of children and young people with life-shortening conditions and their families to the Welsh government, members of the Senedd and other key decision makers.

Our aim is to highlight the significant struggles they face every day and the need for local and national action, so they receive the all-round care and support they require, today and long into the future.

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How we support MSs

Our Public Affairs team supports and works with the Welsh Government, Members of the Senedd and other key decision makers to make sure more children with life-shortening conditions and their loved ones receive the specialist care and support they need.

If you’re an MS or other key decision maker in Wales who is interested in our life-changing work, we can help you by:

Giving you a detailed briefing about our work.

Arranging visits to our hospice

Arranging visits to Tŷ Hafan services in your constituency or local area.

Giving advice on relevant constituency casework

Providing case studies, briefings and statistics for debates and speeches

For more information about how we can work with you, please contact Lewis Clark, our Public Affairs Advisor, at lewis.clark@tyhafan.org

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Recent successes

Additional statutory funding secured

In January 2022, we were delighted that Eluned Morgan MS, Minister for Health and Social Services, announced Tŷ Hafan and Tŷ Gobaith (Hope House’s children’s hospice in north Wales) will each receive £440,000 in additional statutory funding every year, recurrent for at least the lifetime of the Sixth Senedd.

This positive first step towards a more sustainable funding solution for the hospices was in no small part due to the publication of our Family Voices report in 2020.

A big thank you to everyone who supported this campaign. The additional funding you helped to secure will provide us with greater financial certainty and help us do even more for the children and families we care for.

We now look forward to continuing to work with the Senedd to ensure Tŷ Hafan and Tŷ Gobaith play a central role in developing an end-of-life care pathway that’s 100% right for children and young people in Wales.

Michael Sheen meets Seth – Tŷ Hafan’s first member of the Welsh Youth Parliament

Helpful resources

Read or download a range of Tŷ Hafan resources to learn more about our vital services and the difference we make to hundreds of lives every year.

Family Voices report

Published in 2020, our joint report with Tŷ Gobaith children’s hospice sets out the support families of children with life-shortening and progressive conditions need in Wales.

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Tŷ Hafan and Tŷ Gobaith briefing: A Lifeline Fund for Wales

Following the Senedd elections in May 2021, Tŷ Hafan and Tŷ Gobaith increased their efforts to advocate for an uplift in statutory funding.

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Tŷ Hafan and Tŷ Gobaith briefing: Supporting the Families of a Bereaved Child

Published in November 2021, our briefing document provides an overview of Tŷ Hafan and Tŷ Gobaith’s bereavement services

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Tŷ Hafan and Tŷ Gobaith briefing: Supporting Access to Appropriate Short Break Services in Wales

Our Family Voices report revealed that around half of the families we support want more and longer short (…)

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Tŷ Hafan and Tŷ Gobaith Children’s Hospice Week 2022 briefing

To mark Children’s Hospice Week 2022, Tŷ Hafan and Tŷ Gobaith hosted a special event in the Senedd (…)

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