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Making a referral

Anyone can refer a child or young person with a life-shortening illness to Tŷ Hafan, including a healthcare professional, social care worker, parent or another family member.

But the child’s parent or guardian must give their permission, and where possible, it’s important to have the consent of the child or young person too.

 

 

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Routine referral

Children and young people with a wide range of conditions can be referred to us, no matter when they were diagnosed or how far their condition has progressed.

After we receive a referral, our panel of senior Tŷ Hafan professionals will decide whether we can accept a child.

Primarily, they need to know:

  • The child’s life will be shortened by their condition, or a cluster of symptoms, for which there is no reasonable hope of cure.
  • There is a strong possibility the child will die before the age of 18.

However, it’s important to note that we may also accept children and young people with complex health needs caused by an undiagnosed condition.

Get in touch

If you’d like to make a routine referral or ask a question, please contact our clinical nurse specialists on clinicalnursespecialists@tyhafan.org or 02920 532200. They’re available 9am to 5pm, Monday to Friday.

Also, if you’re unsure whether a child meets our criteria, please use the same contact details. We’re happy to discuss cases prior to referral and support initial discussions about Tŷ Hafan with families.

Emergency referral

In certain circumstances, we can provide emergency care to a baby, child or young person with a life-shortening illness so they get the support they need quickly. 

This commonly occurs when a child is approaching the end of their life or an issue has rapidly developed that is affecting the health of a child. 

If you wish to make an emergency referral, please contact our hospice at any time on 029 2053 2200 and state clearly that you’re calling about an emergency referral.  

Our clinical nurse specialists will then get in touch with you as soon as possible to understand the needs of the child and ensure they’re admitted quickly. 

Care for children

We provide outstanding care to children with life-shortening conditions to meet their individual needs and help them have a good quality of life. This vital care is provided in our warm and welcoming hospice, communities across Wales, family homes and local hospitals.

Support for families

We know that caring for a child with a life-shortening illness can be extremely demanding on parents, siblings and other family members. But families in Wales are not alone. We offer vital emotional and practical help to ease worries and simply make life better.