When your world stops.

“Tŷ Hafan were there for us when Violet was dying, they were there for us when she died and they have been there for us since then.”

£82,318 of £75,000 raised

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Violet photo frame

“My husband James had one long final cuddle with her and then I had mine.
Violet passed away peacefully as I cradled her in my arms.”

Please will you help to make sure that no family in Wales faces their child’s short life alone?

Every day thousands of families in Wales live with the fear that it could be their child’s last. Many families are told to ‘say goodbye’ to their child at least five times before the day they’ve been dreading actually happens.

There is very little choice for families about where their child will die outside of Tŷ Hafan. Those who die in hospital are often provided with little support and sent home quickly, not knowing where to turn.

The families of children who have died tell us that they often feel abandoned after the death of their child, they can’t begin to think about planning the funeral, don’t know how to grieve and don’t know how they will carry on.

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At Tŷ Hafan we know that the journey isn’t over when a child dies. We will walk alongside every family as they grieve and give them support for as long as they need us.

“Every single parent of a child who is going to die young deserves to have what we have had. Tŷ Hafan were there for us when Violet was dying, they were there for us when she died and they have been there for us since then. It’s what every parent needs when they lose their child and my heart breaks to know that not every family has that.”

Will you help to make sure that no family in Wales faces their child’s short life alone?

Whatever you can give will be used to fund our vital services for families whose children have died.

Donate today

Thank you for all of your donations so far, you’re amazing!

We are incredibly grateful for the amazing generosity of everyone who has contributed to our appeal so far! If you haven’t yet had the chance to donate, now is the perfect time to get involved. Every contribution, no matter how big or small, goes straight towards helping families in Wales through their child’s short life, and then through bereavement.

£82,318 of £75,000 raised

Donate today

Thank you for all of your donations so far, you’re amazing!

Eleanor Jones

22/01/2025

Fortunately I’ve never had to visit Ty Hafan, but it looks like such a wonderful place. Violets story touched my heart. I wanted to make a contribution so that the care and … Read more

Fortunately I’ve never had to visit Ty Hafan, but it looks like such a wonderful place. Violets story touched my heart. I wanted to make a contribution so that the care and support can continue to help other families xx

Amount Donated
£10.00

Anonymous

14/01/2025

Amount Donated
£68.00

Patrick King

14/01/2025

Amount Donated
£10.00

Eric Bye

14/01/2025

Amount Donated
£50.00

Stephanie Smailes

13/01/2025

Amount Donated
£5.00

Chris McCann

12/01/2025

Amount Donated
£20.00

Lee Hartland

11/01/2025

Amount Donated
£30.00

Anonymous

08/01/2025

Amount Donated
£50.00

Amy Sheldrake

08/01/2025

Amount Donated
£4.00

Frances Palmer

07/01/2025

Amount Donated
£10.00

Mary Smith

07/01/2025

Amount Donated
£10.00

Adele Proctor

05/01/2025

Amount Donated
£5.00

Julia Page

05/01/2025

Amount Donated
£20.00

Christine Williams

05/01/2025

Amount Donated
£10.00

Donald Doe

04/01/2025

Amount Donated
£20.00

ALISON PEPLOW

04/01/2025

Amount Donated
£20.00

Sue Mortemore

03/01/2025

This donation has come from fundraising by myself and with support of Llanishen Craft and Artisan Market crafters and customers

Amount Donated
£300.00

Bristow Group LTD

03/01/2025

Donation from St Athan Search and Rescue Helicopter Base

Amount Donated
£1,000.00

Violet’s story

“Violet’s heartbeat is slowing down. It’ll be soon. Give her a cuddle now.” Adrian, our Nurse, told us. My husband James had one, long final cuddle with her and then I had mine. Violet passed away peacefully as I cradled her in my arms.

Violet was our third child and our first daughter. Whilst I was pregnant with her, a scan showed some abnormalities but I was told they were mild, and I tried not to worry. When she was born, we were told she was ok and for the first month, she was.

I was so anxious all of the time

As time went on, I felt she wasn’t developing in the same way that her older brothers had. Despite many hospital visits, I was continually told she was ok and sent home, but I knew in my heart that there was something seriously wrong.

I felt awful and I was so anxious all of the time. I’d be googling away until 2am some mornings, desperate to find out what was going on with my little girl.

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The most devastating news

Eight months later we were told the most devastating news. Violet had an ultra-rare genetic disorder – TBCK syndrome and that her life would be short.

I was so shocked. Yes, she was sick a lot, but she was so content, you wouldn’t think she had anything wrong with her. She was so smiley all of the time.

Violet loved her big brothers Theo, 7 and Logan, 5, and they just doted on her. Medical people would always comment on what Violet couldn’t do, but the boys didn’t see illness – to them she was perfect, just as she was. We were told she would never walk or talk, but they didn’t care, she was just Violet to them.

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No more pain, just peace and precious time together

Violet was 11 months old when we came to Tŷ Hafan for her end-of-life care. The weather was glorious. Violet hadn’t been outside in months because she’d been in hospital, so to be able to take her outside in the fresh air, with the sun on her face and the sounds of the waves is such a precious memory. Violet told us in her own way that this is where she wanted to be. We heard her giggle for the first time in months and her smiles were constant. There was no more pain, no more fighting, just peace and precious time together. There are no words to say what that means to us.

Tŷ Hafan were there for us when Violet was dying, they were there for us when she died and they have been there for us since then. It’s what every parent needs when they lose their child and my heart breaks to know that not every family has that.

Donate today

Thank you for all of your donations so far, you’re amazing!

We are incredibly grateful for the amazing generosity of everyone who has contributed to our appeal so far! If you haven’t yet had the chance to donate, now is the perfect time to get involved. Every contribution, no matter how big or small, goes straight towards helping families in Wales through their child’s short life, and then through bereavement.

£82,318 of £75,000 raised

Donate today

“Tŷ Hafan were there for us when Violet was dying, they were there for us when she died and they have been there for us since then. It’s what every parent needs when they lose their child and my heart breaks to know that not every family has that.”

Donate today

Hear from other families

As part of our campaign, we’re proud to share the heartfelt stories of three incredible families who have been impacted by the support of Tŷ Hafan. Each story is a powerful reminder of the vital role your donations play in providing care and support to families like these.

Fynley’s Story

At first, I didn’t want to go there, we thought it was just somewhere children went to die, but we couldn’t have been more wrong. When we went to look around, I was so surprised. It wasn’t sad or morbid; it’s a lovely place. The times we had together at Tŷ Hafan were the most precious ever. I treasure those memories.

Winnie’s Story

Our Tŷ Hafan experience was out of this world. We left the hospice after Winnie’s death feeling lighter, but like our lives had turned backwards and we couldn’t suss out the path ahead. But whatever our path is now, we have been, and we still are so supported by Tŷ Hafan on this path.

Zach’s Story

Tŷ Hafan was quiet and peaceful, so that’s where Zach spent his final days. He was back in a calm environment without the constant checks, tests and needles. He was given space to relax.

Thank you for all of your donations so far, you’re amazing!

We are incredibly grateful for the amazing generosity of everyone who has contributed to our appeal so far! If you haven’t yet had the chance to donate, now is the perfect time to get involved. Every contribution, no matter how big or small, goes straight towards helping families in Wales through their child’s short life, and then through bereavement.

£82,318 of £75,000 raised

Donate today