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15.04.2024
Meet the Youth Board
The Youth Board gives them an opportunity to talk openly about the issues they care about and to make a real difference in their communities. Find out more about the fantastic young people on the Youth Board below! Seth My...
15.04.2024
Cai’s story
Matthew and Micaela were 21 when they had their baby boy, Cai. The joy of being first-time parents in a baby bubble quickly turned to fear and heartbreak when Cai became seriously unwell at just a few weeks old. A...
15.04.2024
A day in the life of… a Family Support Worker
Family Support Workers are a key part of our Family Wellbeing and Outreach Team. As well as working in the hospice, they work in local communities in Wales to make sure families get the specialist help they need wherever they...
15.04.2024
‘All about me’ by Pavil
I was born with numerous medical issues, including chronic kidney disease and complex cloacal anomaly, but I had a chance to live. The wonderful doctors and staff at Great Ormond Street Hospital and the University Hospital of Wales took care...
12.04.2024
News from our care services
Spotlight on… Jemma, our Neonatal Clinical Nurse Specialist In our last edition, we explained that we have seen an increase in referrals from Neonatal Intensive Care Units. With medical advancements meaning that babies born very prematurely or with complex health...
04.10.2023
How you can support Tŷ Hafan as a business
When people think of supporting Tŷ Hafan as a business, employee fundraising, donating or volunteering often spring to mind. Those are all brilliant options, but there is a wide variety of opportunities available to you that can help to raise...
04.10.2023
A day in the life of… a Paediatric Palliative Care Physiotherapist
We’re proud to have a multi-disciplinary team at Tŷ Hafan. We give children and families holistic care to meet their physical, emotional and spiritual needs. An important part of that team is Sara Wade-West, our Physiotherapist, who works hard to...
04.10.2023
Alfi’s story
Alfi was born with Neonatal Marfan syndrome, a rare condition that meant his life would be a short one. “On 1st May 2013, Alfi Jay and Besi Jane entered into the world,” says Sara. “Our life became perfect in those...
04.10.2023
Meet some of our fundraising heroes
Here’s what some of our supporters have been up to recently… Festival fundraising More than 160 staff members from the Powys-based online school, King’s InterHigh, volunteered at Glastonbury Festival and generously donated their volunteer fees to Tŷ Hafan. They raised...
03.10.2023
Stay and Play is back!
Stay and Play is a monthly meetup at the hospice for families with pre-school aged children or children whose complex needs mean that they’re unable to go to school. These events are all about getting together, having fun and making...
02.10.2023
News from the hospice
Meet Katie Katie has joined the team as Youth Social Action and Participation Practitioner. This new role ensures the voices of our young people remain paramount. As well as setting up a Youth Board, Katie recently took a young person to present their ideas...
02.10.2023
Introducing… The Founder’s Legacy Den Garden!
The Den, and now its adjoining garden area, is a hideaway for the young people who come to the hospice (aka ‘the squad’!), and they designed the new garden almost entirely themselves. The design process began with consultations with the...