We were told that Marshall had Sanfilippo Syndrome and that he would develop normally until he was about five years old, then he would start to regress. Eventually he would lose all his abilities and suffer from seizures and dementia. I was told then and there that Marshall probably wouldn’t live out his teenage years.
It was much nicer than we expected it to be in Tŷ Hafan. They did loads to make us feel at home. I think that was when we first fell in love with the place.
Back in 2013 we had been told that Alice would not make it to her first birthday – and yet here we are, she is now eight, and we are looking forward to another Christmas all together again.
With every year that has passed, Alice seems to enjoy the buzz of Christmas more and more. A highlight is going to see Santa at Tŷ Hafan – we all love him!
Christmas is a very precious time for us because we don’t know how many more we will have with Alice. Every Christmas with Alice is a gift for us.
Every donation, however big or small, really does make a difference. So, this Christmas, please give to Tŷ Hafan because they give families like ours so much support in so many ways. It really is our absolute lifeline.’
Gifts left in wills to Tŷ Hafan fund 25% of the care that we provide to life-limited children and their families living across Wales. Without these we simply couldn’t continue to provide all of our life-changing services.
Struggling to find the right gift for a special someone this Christmas? Look no further! Our range of Caring gifts are perfect for family, friends or colleagues and help support Tŷ Hafan at the same time.
Take a look at our beautiful range of Christmas cards available. Choose from our wonderful selection of festive cards, and support Tŷ Hafan today.
A gift of £25 could pay for a Clinical Nurse Specialist to meet a newly referred family, providing reassurance that Tŷ Hafan will be there to support them.