this winter, please help us ensure that tŷ hafan is there to support children across wales that need us, diolch

Every Christmas spent together as a family is a gift, especially when you have a child with a life-limiting condition.

Help us give our Tŷ Hafan families the greatest gift this Christmas – time together to make special memories.

Marshall's story

‘Marshall was born full term after a normal delivery. It wasn’t until he was six months old and in hospital with being treated for pneumonia that there was a question mark over his health.

We were told that Marshall had Sanfilippo Syndrome and that he would develop normally until he was about five years old, then he would start to regress. Eventually he would lose all his abilities and suffer from seizures and dementia. I was told then and there that Marshall probably wouldn’t live out his teenage years.

Although I heard the doctor say this to me, I don’t think I accepted it for a while.'

Alice’s Story

‘Even before Alice was born, we were told something wasn’t quite right. We learned that Alice had hydranencephaly. This means that parts of Alice’s brain aren’t working properly, and many parts simply didn’t develop in the first place. Not at all what you expect when you are expecting your first child.

We had been told our baby was going to die. All my husband and I wanted to do was to go home with our baby. But when Alice was just two weeks old we didn’t go home, we went to Tŷ Hafan for end-of-life care.

It was much nicer than we expected it to be in Tŷ Hafan. They did loads to make us feel at home. I think that was when we first fell in love with the place.

Back in 2013 we had been told that Alice would not make it to her first birthday – and yet here we are, she is now eight, and we are looking forward to another Christmas all together again.

With every year that has passed, Alice seems to enjoy the buzz of Christmas more and more. A highlight is going to see Santa at Tŷ Hafan – we all love him! 

Christmas is a very precious time for us because we don’t know how many more we will have with Alice. Every Christmas with Alice is a gift for us.

Every donation, however big or small, really does make a difference. So, this Christmas, please give to Tŷ Hafan because they give families like ours so much support in so many ways. It really is our absolute lifeline.’

 

A donation today could help bring warmth and comfort to children with life-limiting conditions and their families this Christmas.

A regular gift changes lives. By making a monthly donation it provides Tŷ Hafan with a steady income that we can rely upon and allows us to plan for the future.

 

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