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Rose-jean
15.11.2022

Rose’s story

Andrew and Catherine Jeans lost their beloved daughter, Rose, to Atypical Teratoid Rhabdoid Tumour just days after her first birthday. This is their family’s story. “Our daughter, Rose, was born on 11th February 2019. She was perfect and a much longed...
micaela-and-cais-story
08.11.2022

Cai’s Story

“I’m Micaela, mum of two sons – Cai, who passed away at Tŷ Hafan earlier this year and his younger brother Harrison. “So much has happened in my life with Cai. When he was little he was diagnosed with the...
Thomas's story
20.10.2022

Thomas’s Story

“Until autumn 2017, Thomas was a normal eight-year-old boy,” says dad James Meacham, from Blackwood. “He was very fit, he studied karate, he was intelligent, a keen reader of David Walliams and Harry Potter, a total Star Wars geek and...
Marshalls story
20.10.2022

Marshall’s story

“My name is Susan and I live in Bridgend with my two sons, Tyler, 16 and Marshall who is 13. “Tyler is your typical teenager but life has worked out rather differently for his little brother. “Marshall was born full...
20.10.2022

Darcy’s Story

“My middle child, Darcy, was born with Wolf-Hirschhorn Syndrome,” says father of three Matt Evans. “This means she has developmental delay. Darcy is five but is the size of an 18-month-old child. She was born with a cleft lip and...
20.10.2022

Alice’s Story

“Alice is our firstborn but midway through my pregnancy with her my husband, Ian, and I were told something wasn’t quite right,” says mum Hannah Hicks, from Cardiff. “The scan at 20 weeks picked up some issues, and weeks later,...
20.10.2022

Gethin’s Story

Gethin Channon is three and a half and the adored son of Siân and Rob, and beloved little brother to eight-year-old Ffion. The family live in Swansea and have been using Tŷ Hafan children’s hospice for three years after a...
23.09.2022

seth gives keynote speech to global disability summit 2022

The Global Disability Summit event, sponsored by the Charity Include Me Too, the Commonwealth Children & Young People Disability Network and the Group Network of Young Persons with Disabilities, brought together young people from across the world to discuss their...
23.06.2022

Tŷ Hafan is our lifeline and has helped us the most

  Ahead of Children’s Hospice Week, we caught up with them again last month to see how their lives have progressed. “We moved into our home in Usk just over a year ago to be near family,” says Khloe. “Since...
23.05.2022

15 years after I first came here as a child, I’m a nurse working at Tŷ Hafan

International Nurses Day is an international day observed around the world on 12 May each year, to mark the contributions that nurses make to society. Tŷ Hafan’s 80-strong care team includes specialist palliative care nurses, healthcare support assistants, complementary therapists,...