On 1st June, 9-year-old Maisie Humphreys will be taking on the Aberystwyth Twin Peaks Challenge, to raise money for Tŷ Hafan. Maisie will be joined by Mum – Cerys, Dad – Andrew and Nel (who will celebrate her first birthday...
Emily Weaver lives with her parents Liz and John Weaver in the family home in Brackla, near Bridgend. Aged 12, Emily was the first child to pass through Tŷ Hafan’s doors when the hospice opened to children with life-shortening conditions...
Sally Ferriday and her son Jacob live in Palmerston, Barry. In 1999 Jacob, then aged two, was one of the very first children to be supported by Tŷ Hafan after it opened on Monday, 25 January 1999. Here Sally explains...
“Max was born 17 Jan 2016,” says Martina Harding. “He was perfect and a beautiful little brother for our daughter, Mila. But quickly we noticed that things were different for Max.” Within nine weeks of their son’s birth Martina and...
Twenty-nine-year old Tom Martin lives in Cardiff and was first referred to Tŷ Hafan in 2002 at the age of nine. An avid Cardiff City fan, a member of the Welsh National Boccia Squad and BC4 Welsh National Champion, Tom...
Fourteen-year old Cardiff schoolboy Seth Burke has been using Tŷ Hafan for the past six years. The St Cyres pupil was born with Duchenne Muscular Dystrophy, a progressive condition, which means that his muscles are not as strong as those...
Andrew and Catherine Jeans lost their beloved daughter, Rose, to Atypical Teratoid Rhabdoid Tumour just days after her first birthday. This is their family’s story. “Our daughter, Rose, was born on 11th February 2019. She was perfect and a much longed...
“I’m Micaela, mum of three sons – Cai, who passed away at Tŷ Hafan earlier this year and his younger brothers Harrison and Nico. “So much has happened in my life with Cai. When he was little he was diagnosed...
“Until autumn 2017, Thomas was a normal eight-year-old boy,” says dad James Meacham, from Blackwood. “He was very fit, he studied karate, he was intelligent, a keen reader of David Walliams and Harry Potter, a total Star Wars geek and...
“My name is Susan and I live in Bridgend with my two sons, Tyler, 16 and Marshall who is 13. “Tyler is your typical teenager but life has worked out rather differently for his little brother. “Marshall was born full...
“My middle child, Darcy, was born with Wolf-Hirschhorn Syndrome,” says father of three Matt Evans. “This means she has developmental delay. Darcy is five but is the size of an 18-month-old child. She was born with a cleft lip and...
“Alice is our firstborn but midway through my pregnancy with her my husband, Ian, and I were told something wasn’t quite right,” says mum Hannah Hicks, from Cardiff. “The scan at 20 weeks picked up some issues, and weeks later,...