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20.10.2022
Darcy’s Story
“My middle child, Darcy, was born with Wolf-Hirschhorn Syndrome,” says father of three Matt Evans. “This means she has developmental delay. Darcy is five but is the size of an 18-month-old child. She was born with a cleft lip and...
20.10.2022
Alice’s Story
“Alice is our firstborn but midway through my pregnancy with her my husband, Ian, and I were told something wasn’t quite right,” says mum Hannah Hicks, from Cardiff. “The scan at 20 weeks picked up some issues, and weeks later,...
20.10.2022
Gethin’s Story
Gethin Channon is three and a half and the adored son of Siân and Rob, and beloved little brother to eight-year-old Ffion. The family live in Swansea and have been using Tŷ Hafan children’s hospice for three years after a...
23.09.2022
seth gives keynote speech to global disability summit 2022
The Global Disability Summit event, sponsored by the Charity Include Me Too, the Commonwealth Children & Young People Disability Network and the Group Network of Young Persons with Disabilities, brought together young people from across the world to discuss their...
23.06.2022
Tŷ Hafan is our lifeline and has helped us the most
Ahead of Children’s Hospice Week, we caught up with them again last month to see how their lives have progressed. “We moved into our home in Usk just over a year ago to be near family,” says Khloe. “Since...
23.05.2022
15 years after I first came here as a child, I’m a nurse working at Tŷ Hafan
International Nurses Day is an international day observed around the world on 12 May each year, to mark the contributions that nurses make to society. Tŷ Hafan’s 80-strong care team includes specialist palliative care nurses, healthcare support assistants, complementary therapists,...